Region: Europe

  1. The Inn Provides Calm While Study Provides Time

    Posted by on August 22, 2024 in | No Comments

    After a close call to get enrolled, a Swedish family continues its search for answers in an NHGRI study targeting GM1 gangliosidosis We all know the feeling. Sometimes, life just moves too fast. In those moments, it’s good to have a place where the world slows down and little moments can be savored. For Niclas, […]

  2. Family Races Against Time and Virus to Save Their Children

    Posted by on May 27, 2020 in | No Comments

    Racing against time to save their children’s lives, Niclas and Jessica of Sweden weren’t going to let a worldwide pandemic nor international travel restrictions get in their way. Just one hour before the borders closed to foreign visitors, the couple and their three children – all of whom have a fatal, neurodegenerative disease – cleared […]