About The Inn
For Inn Families
Get INNvolved
News & Events

Donate
Volunteer
Contact Us

About The Inn
For Inn Families
Get INNvolved
News & Events

Home »Posts Tagged "CANDLE Syndrome"

CANDLE Syndrome

Brother and sister with CANDLE Syndrome

Siblings Help Advance CANDLE Syndrome Research

December 5, 2014 | Posted in Family Stories, Stories

read story

Keep me informed of the latest posts!

Leave This Blank:Leave This Blank Too:Do Not Change This:

Your email:

Latest Posts

Car Fans Bring Joy to Children
Run the Marine Corps Marathon to Benefit NIH Pediatric Patients
Golfers, Sponsors, Sunshine Make 2019 Golf INNvitational a Success

Categories

Volunteer Stories Other Stories Family Stories Donor Stories

Tags

#INN2025 #PuppyCam #RunINN4Kids (NF1) 2019 Golf INNvitational abetalipoproteinemia Abram ALL Alveolar soft tissue sarcoma Amber An Evening for Hope Gala Aplastic anemia Art Aucte Lymphoblastic Leukemia Auction Preview Autumn Be Best Bingo Board Booz Allen Booz Allen Hamilton Camp Camp TLC Cancer CANDLE Syndrome Car Show CAR-T CAR-T cell therapy CAR-T therapy Caregiver Appreciation Carnival Carson Cathy Bernard CCF CDG Children's Cancer Foundation Christmas in July Clinical Center Cone-Rod Dystrophy Congressional Reception Congressional Reception 2019 Corporate Partnerships Corporate Sponsor CSRA David McBain DC United Deloitte Diffuse Intrinsic Pontine Glioma DIPG DOCK8 Donor Stories Dr. Nirali Shah Driven to Cure Education Program Evening for Hope 2018 Evening for Hope 2019 Faith Family Stories Farrah Mackenzie Father's Day First Lady Melania Trump FLOTUS Francis Collins GAN GDIT Giant Axonal Neuropathy GIST Clinic Golf INNvitational Green family Hanoch Teller Holidays Hyperimmunoglobulin E Syndrome Immunotherapy Inn Squad INNrichment Fund Jalen Robinson Job’s Syndrome Jordan Jordan Larocco K's for Kids Kelvin Womack Leidos Lori Wiener Lung and Blood Institute Marine Corps 10K Marine Corps Marathon Martina McBride Medullary Thyroid Carcinoma Melania Trump Montgomery County Police Montgomery County Police Department NASA National Cancer In National Cancer Institute National Heart National Heart Lung and Blood Institute National Human Genome Research Institute National Institute of Allergy and Infectious Diseases National Social Work Month NCATS NCI Neaz NEI NETE Neurofibromatosis Neurofibromatosis Type 1 NFKB1 NHGRI NHLBI NIAID NIAMS NICHD Niemann-Pick Disease Type C Niemann-Pick Type C disease (NPC) NIH Clinical Center NIH Director NIH Police Department NINDS Noah Paige Painting Pediatric Remembrance Ceremony pheochromocytoma Rare Disease Rare Disease Day Rare Disease Day at NIH Respite Weekend Rock and Roll for Children Rock and Roll for Children Foundation RRFC Santa Claus Sibling Day Sibling Day 2018 Sickle Cell Sickle Cell Anemia SLOS Soccer Soccer for the Future Social Work Strategic Plan Summer Fun Synovial Sarcoma Teen Programming Tesla Tesla Kid Car The Children's Inn at NIH The Gift of Gerbert's Feather's Therapy Dog UDP Undiagnosed Disease Program Undiagnosed Disease Program (UDP) Undiagnosed Diseases Program Valentine's Day Viola volunteer Volunteer Appreciation Washington Nationals White House White House Easter Egg Roll World Cup X-linked agammaglobulinemia Xavier XLA YAC Youth Art for Healing Zilly

Archives

Sign Up for eNews from The Inn sign up now

Follow Us On:

Facebook
Twitter
instagram
Flickr
YouTube
LinkedIn
Pinterest

About The Inn
For Inn Families
Get INNvolved
News & Events

Menu Item
Menu Item
Menu Item

Menu Item
Menu Item
Menu Item

© 2019 The Children’s Inn at NIH | All rights reserved. Privacy Policy

The Children’s Inn at NIH | 7 West Drive | Bethesda, MD 20814-1509 | 301-496-5672 or toll free 800-644-4660