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Girl with Dr. Collins

College Student lives with Common Variable Immune Deficiency (CVID)

During her junior year of college at The University of the South, Ezmee Hutton felt like she was coming down with a bad case of the flu, but when her symptoms didn’t go away, she saw doctors in Tennessee and at the University of Virginia and was diagnosed with an immune system disorder called Common […]

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Brumbeloe Family Outside

Two-Year-Old Kamryn Living with Niemann-Pick Disease Type C (NPC)

With a contagious laugh and a vivid imagination, two-year-old Kamryn Brumbeloe, from Guntersville, Alabama, commands the attention of everyone she encounters. Now that she is old enough to run, she bounces around The Inn from one toy or play area to another. Kamryn has been coming to the National Institutes of Health (NIH) and The […]

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Pint-Sized Chef Doesn’t let Hyperimmunoglobulin E Syndrome Hold her Back

Sydney Coore, six, can’t help giggling while preparing the perfect peanut butter and jelly sandwich in one of the two newly remodeled kitchens at The Children’s Inn at NIH. For this pint-sized chef, PB&J is child’s play when it comes to the kitchen. Perched on top of a stool in order to reach the counter, […]

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