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Pepe Bryan

A New Clinical Trial Opens a Door for Pepe

When Pepe Bryan, 18, heard his cancer had returned, he felt hopeless. “I don’t normally cry, but I cried then,” he said. Before his first diagnosis the previous year, Pepe noticed he had begun drinking unusually large amounts of water. He eventually developed a strong pain on the right side of his belly, and his […]

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Girl with Dr. Collins

College Student lives with Common Variable Immune Deficiency (CVID)

During her junior year of college at The University of the South, Ezmee Hutton felt like she was coming down with a bad case of the flu, but when her symptoms didn’t go away, she saw doctors in Tennessee and at the University of Virginia and was diagnosed with an immune system disorder called Common […]

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Brumbeloe Family Outside

Two-Year-Old Kamryn Living with Niemann-Pick Disease Type C (NPC)

With a contagious laugh and a vivid imagination, two-year-old Kamryn Brumbeloe, from Guntersville, Alabama, commands the attention of everyone she encounters. Now that she is old enough to run, she bounces around The Inn from one toy or play area to another. Kamryn has been coming to the National Institutes of Health (NIH) and The […]

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